First, some questions about you.
* must provide value
Yes
No
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Nurse Practitioner/Certified Nurse Midwife
Physician Assistant
Physician (MD, DO)
Other
Prefer not to answer
Are you currently enrolled in a residency training?
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Yes
No
Prefer not to answer
* must provide value
< 5
5-9
10-14
15-19
20 or more
Prefer not to answer
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Internal Medicine
Family Medicine
Geriatrics
Pediatrics
Obstetrics/Gynecology
Other
Prefer not to answer
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0-25
26-50
51-100
101-150
151-200
201-250
251 or more
Prefer not to answer
* must provide value
8 What is the zip code of your main practice setting?
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Male
Female
Transgender man
Transgender woman
Other
Prefer not to answer
* must provide value
Yes
No
Prefer not to answer
* must provide value
What information on Social Determinants of Health does your practice routinely collect information from patients? Please check all that apply.
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How confident do you feel in your ability to identify and diagnose rare cancers?
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Very confident
Somewhat confident
Neutral
Somewhat not confident
Not confident at all
What signs or symptoms would prompt you to test for a rare cancer?
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How often have you done tests for rare cancers?
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Very frequently
Occasionally
Rarely
Almost never
Never
When would you do a diagnostic test for rare cancer in your practice?
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Before referral to specialty care
After referral to specialty care
At the same time as referral to specialty care
I don't know
Have you ever encountered a rare cancer in your practice?
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Yes
No
I'm not sure
How many rare cancers have you encountered in your practice?
Which rare cancers have you encountered in your practice?
When you have encountered a rare cancer patient in your current practice, have you experienced any of the following challenges? Please check all that apply.
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Have you received any specialized training or education regarding the identification and management of rare cancers outside your formal academic degree training (e.g., medical school, residency, PA school, APN graduate program)?
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Yes
No
I'm not sure
What are the primary sources of information you rely on to stay updated about the latest advancements and symptoms of rare cancers? Please check all that apply.
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In your opinion, what additional resources or support would be helpful for primary care providers to improve the identification and management of rare cancers? Please check all that apply.
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Fewer than 5
5-9
10-14
15-19
20 or more
Prefer not to answer
Enter a number (>=0)
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Yes
No
Not sure
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YES
NO
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1 Not at all confident
2
3
4
5
6
7 Completely confident
Prefer not to answer
What other symptoms might lead you to suspect inflammatory breast cancer?
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Try a different antibiotic
Refer the patient for breast imaging (e.g., ultrasound, mammogram)
Refer the patient for a PET scan or CT scan
Refer the patient to an oncologist immediately
Refer to breast surgeon/breast center
Do a skin biopsy in PCP office
Other
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Large tertiary care center
Local private specialty clinic
Other
The option "
Please select the three methods that you would most prefer to learn more about diagnosing and caring for patients with IBC?
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Briefly, please tell us why you are not interested in materials about IBC for patients.
Briefly, please tell us why you are not interested in materials about IBC for providers
Yes
No
Prefer not to answer
Could such a program be useful to your practice?
* must provide value
Yes
No
I don't know
Do you perceive that, due to the COVID-19 pandemic, your patients may have had delayed screenings or presentations for cancer?
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Yes
No
Not sure
Prefer not to answer
If you wish to share any additional thoughts about those delays, please do so here.
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< 5%
5-10%
11-20%
21-30%
>30%
Prefer not to answer
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No, never postponed
Yes, < 5% were delayed
Yes, 5-10% were delayed
Yes, 11-20% were delayed
Yes, 21-30% were delayed
Yes, >30% were delayed
Yes, but I do not know the details
Prefer not to answer
Please share your general impressions of how, if at all, telemedicine affects your ability to diagnose and treat breast cancer patients.
If you would like more information about IBC or the IBC Consortium , please follow this link
IBC Consortium
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