Dear Participant:

Neurologists, patients, and the Myasthenia Gravis Foundation of America are interested in understanding the COVID vaccination in patients with myasthenia gravis (MG). We would like to learn about vaccination status in patients with myasthenia, any vaccine related adverse events, COVID infections before or after vaccination (for example, risks of infection after receiving the vaccine), and other strategies used by patients with MG in preventing COVID. Whether or not you have been vaccinated, your responses will be very valuable in understanding the patient’s viewpoint on the vaccine.

This survey is voluntary and your completion of the survey serves as consent to participate and allow your responses to be used as part of the study data. Your survey responses will remain confidential. Only the study investigators will have access to the data and it will only be used for the purposes of this research. No compensation will be provided for completing the survey. The survey will take 15-20 minutes.

No personal information will be recorded. As no identifying information is recorded, once your responses are submitted, the responses will be used for study purposes and cannot be withdrawn. At the end of this survey, you will be offered an option to participate in brief, less than 5-minute, follow-up surveys. If you would like to participate in follow-up surveys, we will ask for an email address to send future surveys. You can choose not to participate in future surveys at any time.

If you have questions about how this data will be used or analyzed, please contact the study team at: MGandCOVIDVaccine@duke.edu to have your questions addressed before submitting your responses. Or you may contact the Duke IRB at (919) 668-5111.

We hope you will consider participating in this important study which will impact the global community of MG patients and providers. We will share a summary of the study results with the MG community through the MGFA website and other venues.

Thanks in advance for your participation.

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